The National Patients' Organization (NPO) has called for screening for a greater number of rare diseases in newborns. "The earlier a diagnosis is made, the higher the quality of life afterwards," Natalia Maeva, deputy chair of the NGO and chair of the "Rare Diseases and Transplants" section of the organization, told BNR.
According to data from the National Genetic Laboratory in Bulgaria, three mandatory screening tests are performed on babies, and only one of them is for a rare disease - phenylketonuria. NGOs insist on the creation of a National Strategy for people with rare diseases and point out that it is not clear how many people have such diseases in our country due to the incomplete registers of individual diseases. It is not known what part of these people receive treatment from the Health Insurance Fund and how many are forced to pay for it themselves when their disease is not part of the Ministry of Health’s list of rare diseases.
Military Minister Atanas Zapryanov has confirmed to journalists that he would accept to remain in the next caretaker cabinet if offered the post. "The main long-term priority in the next caretaker mandate will be personnel. We will develop a..
Dimitar Glavchev has a second chance to present a cabinet that will ensure the holding of fair and transparent elections , so that we can have a new government in a few months, Vice President Iliana Iotova told journalists. Ms Iotova attended the..
MEP Ilhan Kyuchyuk has sent written questions to the European Commission regarding reports of large-scale biased inspections by the General Directorate for Combating Organised Crime, the Anti-Corruption Commission, the National Revenue Agency and other..
Friday will be sunny with clouds in the afternoon , especially in the east where there will be showers and thundershowers. Minimum temperatures will be..
As the snap election draws nearer, GERB leader Boyko Borissov called for shared responsibility with the other political forces. This took place at a..
23 August is a day of commemoration of the victims of the crimes committed by the national socialist, communist and other totalitarian regimes...
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