Podcast in English
Text size
Bulgarian National Radio © 2024 All Rights Reserved

Nearly 400,000 people in Bulgaria suffer from rare diseases

Photo: BNR-Plovdiv

5% or around 400,000 people in Bulgaria suffer from rare diseases, with approximately 75% being genetic. Due to missing registries, however, it is difficult to establish the actual number of patients with such diagnoses, reported BNR Plovdiv.

In order to waise awarensess about the problems of people with rare diseases, fourth graders from Plovdiv danced a colorful horo chain dance in the town center to the sounds of Rhodope songs performed by a folklore formation from the village of Orehovo. The Institute for Rare Diseases reports that legislative changes have already been initiated to improve access to treatment for people with rare diseases. An increase in the number of diseases included in newborn screening is also expected.




Последвайте ни и в Google News Showcase, за да научите най-важното от деня!
Listen to the daily news from Bulgaria presented in "Bulgaria Today" podcast, available in Spotify.

More from category

President Rumen Radev

President Radev to hand the second governing-forming mandate next week

President Rumen Radev is to hand the second governing-forming mandate next week. ''I expect We Continue the Change - Democratic Bulgaria (PP-DB) to clearly state whether they will be an opposition or will seek support for forming a government'',..

published on 7/12/24 10:16 AM
Caretaker Premier Dimitar Glavchev

Caretaker Premier Glavchev: It is important for Bulgaria to have a regular government

Caretaker Premier Dimitar Glavchev said from Washington that he did not know why the president had not yet announced a date for handing over the second exploratory mandate to form a government. "Surely, President Rumen Radev has some considerations..

published on 7/12/24 8:48 AM

Deep Purple, Mr. Big and Accept special guests at the festival Midalidare - Rock in the Wine Valley

13 bands from abroad will perform on the big stage of the 4 th edition of Midalidare - Rock in the Wine Valley , 12-14 July, alongside the headliners Deep Purple, Mr. Big and Accept, among them Axel Rudi Pell, Hammerfall, Beast in Black, The..

published on 7/12/24 7:05 AM