Podcast in English
Text size
Bulgarian National Radio © 2024 All Rights Reserved

Nearly 400,000 people in Bulgaria suffer from rare diseases

Photo: BNR-Plovdiv

5% or around 400,000 people in Bulgaria suffer from rare diseases, with approximately 75% being genetic. Due to missing registries, however, it is difficult to establish the actual number of patients with such diagnoses, reported BNR Plovdiv.

In order to waise awarensess about the problems of people with rare diseases, fourth graders from Plovdiv danced a colorful horo chain dance in the town center to the sounds of Rhodope songs performed by a folklore formation from the village of Orehovo. The Institute for Rare Diseases reports that legislative changes have already been initiated to improve access to treatment for people with rare diseases. An increase in the number of diseases included in newborn screening is also expected.




Последвайте ни и в Google News Showcase, за да научите най-важното от деня!
Listen to the daily news from Bulgaria presented in "Bulgaria Today" podcast, available in Spotify.

More from category

Dzhevdet Chakarov (L) and Delyan Peevski (R)

The political forces see changes in the political configuration following the rift in DPS

Most political forces in parliament commented on what is happening in the Movement for Rights and Freedoms (DPS) as internal problems of DPS. According to the chairman of the GERB-SDS parliamentary group, Boyko Borissov, the fact that there is a..

published on 7/11/24 5:19 PM
Ramadan Atalay

Two more MPs leave MRF parliamentary group

After 17 MPs from the Movement for Rights and Freedoms, MRF, were expelled, among them the party’s other co-chair Dzevdet Chakarov, MRF MP Ahmed Vranchev expressed, in written form, a desire to leave the Movement’s parliamentary group. DPS..

published on 7/11/24 4:43 PM

ALDE could expel the Movement for Rights and Freedoms

Several European liberal parties have sent a letter to the Alliance of Liberals and Democrats for Europe (ALDE) to demand that Delyan Peevski be monitored, pointing out that he has been sanctioned for corruption by the US under the Global Magnitsky..

published on 7/11/24 3:23 PM