Podcast in English
Text size
Bulgarian National Radio © 2024 All Rights Reserved

Nearly 400,000 people in Bulgaria suffer from rare diseases

Photo: BNR-Plovdiv

5% or around 400,000 people in Bulgaria suffer from rare diseases, with approximately 75% being genetic. Due to missing registries, however, it is difficult to establish the actual number of patients with such diagnoses, reported BNR Plovdiv.

In order to waise awarensess about the problems of people with rare diseases, fourth graders from Plovdiv danced a colorful horo chain dance in the town center to the sounds of Rhodope songs performed by a folklore formation from the village of Orehovo. The Institute for Rare Diseases reports that legislative changes have already been initiated to improve access to treatment for people with rare diseases. An increase in the number of diseases included in newborn screening is also expected.




Последвайте ни и в Google News Showcase, за да научите най-важното от деня!
Listen to the daily news from Bulgaria presented in "Bulgaria Today" podcast, available in Spotify.

More from category

IMF reappoints Kristalina Georgieva as managing director for another five-year term

Kristalina Georgieva will lead the International Monetary Fund for a second five-year term. The IMF's executive board confirmed on Thursday that it had reappointed Kristalina Georgieva as managing director of the international financial institution...

published on 4/13/24 10:41 AM
Prof Dr Georgi Zhelev

Bulgaria is a member of NASA's lunar flight programme, says director of the Institute of Space Research and Technology

Bulgaria has become a member of NASA's Artemis programme , which is a continuation of the Apollo programme. Its main objective is related to manned flights to the Moon. The idea is that it will also be a stepping stone for eventual flights to Mars, the..

published on 4/12/24 5:35 PM

Weather forecast for April 13: Sun in the west, showers in the east

On Saturday the lowest temperatures will range from 9 °C and 14°C, for Sofia 9°C. It will be mostly sunny during the day. Cloudiness will increase over Central and Eastern Bulgaria. Brief showers and thunderstorms are expected in some areas...

published on 4/12/24 5:20 PM