Podcast in English
Text size
Bulgarian National Radio © 2024 All Rights Reserved

Nearly 400,000 people in Bulgaria suffer from rare diseases

Photo: BNR-Plovdiv

5% or around 400,000 people in Bulgaria suffer from rare diseases, with approximately 75% being genetic. Due to missing registries, however, it is difficult to establish the actual number of patients with such diagnoses, reported BNR Plovdiv.

In order to waise awarensess about the problems of people with rare diseases, fourth graders from Plovdiv danced a colorful horo chain dance in the town center to the sounds of Rhodope songs performed by a folklore formation from the village of Orehovo. The Institute for Rare Diseases reports that legislative changes have already been initiated to improve access to treatment for people with rare diseases. An increase in the number of diseases included in newborn screening is also expected.




Последвайте ни и в Google News Showcase, за да научите най-важното от деня!
Listen to the daily news from Bulgaria presented in "Bulgaria Today" podcast, available in Spotify.

More from category

Army personnel and two helicopters join efforts to put out big fire in Mount Sredna Gora

Army personnel and two helicopters from the 24 th air base at Krumovo have joined the efforts to extinguish a big fire in Mount Sredna Gora close to Pesnopoy village, Kaloyanovo municipality and Mihiltsi village, Hisarya municipality. The..

published on 7/12/24 3:23 PM
Rumen Radev on board the frigate Drazki, 12 July, 2024

On board Drazki frigate President Radev calls for the modernization of the Bulgarian navy to continue

President Rumen Radev called for the processes of modernization of the navy to continue. On board the frigate Drazki in the Black Sea, the president, the Deputy Minister of Defence Radostin Iliev and the commander of the Bulgarian navy rear admiral..

published on 7/12/24 1:27 PM
Commissioner for Innovation, Research, Culture, Education and Youth Iliana Ivanova

European Commissioner Iliana Ivanova: Frequent elections are not a good sign

"It is important for us to stand firm and instill confidence in our European partners, and this frequent change of governments, frequent elections, does not send a good signal", Commissioner for Innovation, Research, Culture, Education and Youth..

published on 7/12/24 11:23 AM